Lin, R. S. Y., Yu, D. S. F., Li, P. W. C., Chau, P. H., & Lee, J. J. (2021). Lived experience of neuropsychiatric symptoms among females with mild cognitive impairment: A phenomenological study. Journal of Advanced Nursing, 00, 1– 12. https:///10.1111/jan.15088 輕度認(rèn)知障礙患者神經(jīng)精神癥狀的生活體驗(yàn):現(xiàn)象學(xué)研究 Aims 研究目的To explore the lived experience of neuropsychiatric symptoms (NPS) among females with mild cognitive impairment (MCI). 本研究旨在探討輕度認(rèn)知障礙患者神經(jīng)精神癥狀的生活體驗(yàn) Design 研究設(shè)計(jì)A phenomenological study using individual, semi-structured, telephone-based interviews was conducted to explore how the NPS are aroused, evolve, and affect the overall well-being, illness perception and the corresponding coping responses adopted by females with MCI. 本研究設(shè)計(jì)為現(xiàn)象學(xué)研究。采用面對(duì)面-電話半結(jié)構(gòu)訪談,探討神經(jīng)精神癥狀是如何發(fā)生、發(fā)展和影響輕度認(rèn)知功能障礙女性患者的整體幸福感、疾病感知和應(yīng)對(duì)方式的。 Methods 研究方法Twenty-nine participants with MCI were recruited from the community setting in Hong Kong between March and October 2020. Interviews were audio-recorded, transcribed verbatim, and analysed using an interpretative phenomenological analysis approach and constant comparison strategy. 在2020年3月至10月期間,從香港社區(qū)中招募了29名輕度認(rèn)知功能障礙女性患者。訪談錄音、逐字記錄,并使用解釋性現(xiàn)象學(xué)分析方法和持續(xù)比較策略進(jìn)行分析。 Results 研究結(jié)果Three themes were identified: (1) living vigilant lives with threats and uncertainty, (2) snowballing into further negative emotions and (3) seeking outlets for negative emotions. Our findings suggested that the participants' cognitive, functional and social challenges aroused intense emotional responses such as depression, agitation and anxiety. These noting negative emotions were further perpetuated by maladaptive coping responses, unrealistic expectations from coping strategies and overwhelming disease burden. Various internal and external strategies were adopted to enhance emotional adaptation, of which adopting a positive attitude appeared to be the most promising strategy. 本研究確定了3個(gè)主題:(1)生活處于恐慌和不確定性;(2)出現(xiàn)越來越多的負(fù)面情緒;(發(fā)展)(3)尋求緩解消極情緒的方式。我們的研究結(jié)果表明:參與者的認(rèn)知、功能和社交等方面的挑戰(zhàn)會(huì)引起如抑郁、焦慮等強(qiáng)烈的情緒反應(yīng)。不適的應(yīng)對(duì)反應(yīng)、應(yīng)對(duì)策略中不切實(shí)際的期望以及疾病負(fù)擔(dān)都會(huì)進(jìn)一步加重負(fù)性情緒反應(yīng)。研究人員采用了各種內(nèi)部和外部的策略來增強(qiáng)其情緒適應(yīng),其中,采取積極的態(tài)度似乎是最有希望的策略。 Conclusion 研究結(jié)論This study shed light on the challenging experience of MCI. The cognitive afflictions and the resultant impacts on various life domains evoked a cluster of NPS. Support services need to enhance emotional adjustment through alleviating the various life stressors and strengthening the coping resources. 這項(xiàng)研究揭示了輕度認(rèn)知障礙女性神經(jīng)精神癥狀的一些生活經(jīng)歷。認(rèn)知上的問題以及對(duì)其生活各個(gè)領(lǐng)域的影響引發(fā)了一些列的神經(jīng)精神癥狀。支持服務(wù)需要通過舒緩各種生活壓力及加強(qiáng)其應(yīng)對(duì)資源,進(jìn)而加強(qiáng)其情緒適應(yīng)。 Impact 研究意義Elucidating the lived experience of NPS provides important insights into the development of a more effective, comprehensive and person-centred care planning for the population with MCI. Holistic care planning should extend beyond cognitive health optimization into enhancing disease knowledge, improve emotional coping, rebuild self-identity and bolstering social supports among this preclinical cohort. 闡明NPS的生活經(jīng)歷為制定更有效、全面和以人為本的MCI患者護(hù)理規(guī)劃提供了重要的見解。在這一臨床前隊(duì)列中,整體護(hù)理規(guī)劃應(yīng)超越認(rèn)知健康優(yōu)化,擴(kuò)展到提高疾病知識(shí)、改善情緒應(yīng)對(duì)、重建自我認(rèn)同和加強(qiáng)社會(huì)支持。 # 推薦(宣傳)一下我們的課程:
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